Friday, 29 April 2016

Spring 2016




It's been a long time since you have heard from me. Over the past many months I've had both good days and bad days. It's a good day when I get a lot of rest. And it's a bad day when I get a lot of rest. It's good to get a lot of sleep, but I miss out on life when I get a lot of sleep. All in all, however, I've had more good days than bad. 

What makes it all worthwhile is having family around me. I find that it is especially good to know that my kids are finding joy in their life. Sarah is working toward her PhD in Dance Science. Bronwyn is working at Little Warriors helping them with their publicity, education and event planning. Brody has taken on a new position in Vancouver as a buyer for Discovery Organics and is settling in there well with his partner, Jessica.  I love my grand-kids. Sebastian, Forrest, and Maeve are all so close to my heart. It's always good when they visit. I wish I had more energy to be with them.


It's so good to have my sister, Kate, come from San Fransciso every 2-3 months. My brother, Dave and often my sister-in-law Val come up regularly from Cochrane. Di's sister and brother-in-law, Sue and Gene, visit a few times a year from Nelson, BC.

Val, my care-giver, keeps her dedication as I get more and more dependent. She keeps things light around here with her loving care and sense of humour. We have worked together with Val for about 18 months now and simply couldn't have gone this far without her. A second care-giver, Phil, started with us about 4 months ago. And Di, of course, continues to faithfully care for me.

I have had some lovely walks to the edge of the river valley. With the weather warming, it's been good to get outside. We have a few projects on the go. We are renting a community garden plot this year to grow our own vegetables. The plots just happen to be across the road in the hospital grounds. Very convenient!

We have started a photo essay project with our son-in-law's sister, Cherie. Cherie is a  photographer and is enthused about the project, loosely thought of as "A Day in the Life of Hal."

More equipment has been installed in the house. I have a medi-lift chair which is great for listening to audiobooks, watching one of the bird feeders and napping in. We also have had the ceiling track installed for the sling chair, which I have not needed thus far.

Medical issues I am currently dealing with are early cataracts, likely due to age and dexamethazone. As well, right sided pain, like pins and needles, which massage has helped immensely. Massage has also helped edema in my hands and feet. I am very grateful to Isabelle, Val and Di for helping with this. The aphasia is getting worse. It is harder to say what I want. Many times I think I have said something correctly but I can tell by the look on Di's face that I haven't. My memory is very short. I think of something really great that I want to say. Then I can't remember it a few seconds later. 

January 5, 2016, the Palliative Care Society came to visit and informed us that there is a plan to renovate the palliative care room at the hospital and dedicate it to myself. Funds have been donated from Peak Theatre Players, our local amateur theatre group, after their production of Calendar Girls in the Fall. I was the photographer for Peak Theatre for many years and walked the boards myself a few times. I have very fond memories of my time with Peak and am very grateful for this honour.

Here is the link to the article in the local newspaper:
http://www.sundreroundup.ca/article/The-footprints-of-a-great-physician-leader-Dr-Hal-Irvine-20160329

As a physician, my eyes have been opened to what it is like to be a patient, from being in noisy hospitals to suddenly feeling non productive.I feel that I would be a different physician if I got a second chance. I particularly understand better why a patient would want to die at home and I'm grateful I have this option.  

I am going to close with a no-holds-barred poem.  
  
The Dakini Speaks
by Jennifer Welwood

My friends, let’s grow up.
Let’s stop pretending we don’t know the deal here.
Or if we truly haven’t noticed, let’s wake up and notice.

Look:  Everything that can be lost, will be lost.

It’s simple—how could we have missed it for so long?
Let’s grieve our losses fully, like ripe human beings,
But please, let’s not be so shocked by them.

Let’s not act so betrayed,
As though life had broken her secret promise to us.

Impermanence is life’s only promise to us,
And she keeps it with ruthless impeccability.

To a child she seems cruel, but she is only wild,
And her compassion exquisitely precise:
Brilliantly penetrating, luminous with truth,
She strips away the unreal to show us the real.

This is the true ride—let’s give ourselves to it!
Let’s stop making deals for a safe passage:
There isn’t one anyway, and the cost is too high.

We are not children anymore.
The true human adult gives everything for
         what cannot be lost.

Let’s dance the wild dance of no hope!

Hal









Monday, 23 November 2015

Amelia Curran







 
Amelia Curran played at the Sundre Arts Centre on Friday, October 16. She is a Juno Award winning songstress, said to be the next 'Leonard Cohen'. I really wanted to go, but knew that an evening concert would be just too much. Then Di surprised me. She and the Music Committee of the Sundre Arts Centre Music Series had reached out to Amelia. Without hesitation, Amelia agreed to a House Concert and came to perform for me before her show at the Arts Center. It was so special and I am very grateful to Amelia and the Music Committee. Thank you.

I want to talk about how some days are frustrating. I can no longer do computer work, photography, read, write. The aphasia is worse, even more since my last seizure.

I have started doing Healing Touch. I don't know how it works but I want to do it again. I find it helps to relax and sleep. I don't need much help to sleep though. 

Forrest celebrated his first birthday with us on September 18. We are the September birthday boys.  Sebastian was Nana's helper, picking up the balloons and chocolate cake, wrapping presents and then opening the presents! I don't know how long I have, so I am enjoying as much time with my kids and grandkids as I can.

I still enjoy being with family, especially my three grandchildren:  Sebastian 3 yrs., Forrest 1 yr. and Maeve turned 1 yr on November 21. We also celebrated with family, balloons and a Winnie the Pooh cake. Maeve really enjoyed eating her cake. It was special to be there and celebrate. I still enjoy being with friends and reminiscing.

However, there are some days I have never felt so sad.
I am ready to die.

I can no longer walk or even stand.
I can no longer read or write.
My vision, right sided weakness and aphasia are declining.
It is hard to understand what people are saying to me.
Communication takes all my energy.

I am happy because I know my family and friends are going to be ok.

I do not have to deal with pain.
I sleep much of the time.
It feels good.
But I am tired of feeling tired all the time.

For everything I am going through some days are good and some days are bad.

  
Melancholy thoughts carve out an interior space
where wisdom can take up residence. 
~Thomas Moore 


I walked a mile with Pleasure
She chatted all the way;
But left me none the wiser
For all she had to say.

I walked a mile with Sorrow
And ne'er a word she said;
But, oh! The things I learned from her, 
When Sorrow walked with me. 

~Robert Browning Hamilton  



 Hal Irvine