2015 started very well. January was a
good month. I felt much better. I was able to stay awake more in
the day which allowed me to work on scanning my slides and enjoy listening to
audio books
Since July, I have been on a half dose of
Avastin every two weeks. The frequent trips to Calgary are quite draining
however. It takes about 2 or 3 days for me to recover. After such a
good January, we have decided to try treatment every three weeks now instead of
every two. I wonder if this change will make any difference.
Lately, I haven't been feeling as
good. Particularly since my last Avastin treatment which was two weeks
ago. I am less able. I can only walk about 10 steps. The
wheelchair is my only way of getting around which is very frustrating.
The weakness on my left side has increased which means I am not able to do as
much as I could in the past. My right side, which is most impacted by the
tumour, is also weaker than it used to be, especially from my forearm to my
fingers.
I have just completed my slide scanning
project, so I am starting a new project on the computer (organizing my files
and decluttering!). But this is not going well. I don't know if it
because of the tumour progressing or if it is because of the effort and energy
I need to doing something new (brain training?!).
It is hard to talk about things as it takes
a lot of energy to say what I want. I feel like I am getting worse again
and yet I am not sure. I felt so well in January and February. For
some reason I was feeling good but I am not sure now. It feels like I am
declining again even though we decided to go to every three weeks with Avastin
because I was feeling good.
So much is unknown....
I chose this photo of a deer who was in our
backyard because in some ways it thinks it should be afraid but really, it is
not afraid.